If you have a family member enrolled in Florida's APD program, you may have heard that Congress is cutting Medicaid. You may have wondered whether that affects you. It does. Directly. And the families who understand what is at stake right now are the ones who will be best positioned to protect their loved ones.
Florida's Agency for Persons with Disabilities operates through a program called the iBudget Waiver — or, more recently, through Florida Community Cares. Most families know these by name without knowing what funds them at the federal level. The answer is Medicaid.
Every service your family member receives through the APD system — residential care, personal supports, behavioral services, transportation, therapy — is funded through a Medicaid waiver. The federal government provides the majority of that funding to the state of Florida, which administers it through APD. When Congress cuts Medicaid, it is cutting the foundation that every one of those services is built on. This is not an abstract policy debate. It is a direct threat to the care your loved one receives today.
The legislation currently moving through Congress proposes cutting more than one trillion dollars from Medicaid over the next decade. According to Protect Our Care, a nonpartisan healthcare advocacy organization tracking the legislation in real time, 7.5 million Americans are at risk of losing Medicaid coverage entirely — and 2 million have already been cut since the bill's passage.
The cuts operate through several mechanisms that are particularly harmful to the disability community. New bureaucratic requirements make it harder to enroll or maintain enrollment. Work reporting requirements that do not account for the nature of disability add procedural barriers that have historically caused people to lose coverage not because they are ineligible, but because the paperwork becomes impossible to navigate. Per capita caps on federal Medicaid spending shift financial pressure onto states, which then must decide whether to cut services, reduce enrollment, or both.
For Florida's APD population — adults with intellectual and developmental disabilities who depend on waiver services to live in community settings — every one of these mechanisms represents a potential interruption to the care they have been authorized to receive.
One of the less-discussed consequences of Medicaid cuts to disability services is what happens when community-based care becomes unavailable. The answer, historically, has been institutionalization.
Home and community-based services — the category that includes group home residential care, personal supports, and most of what APD funds — exist specifically to keep people with disabilities living in community settings rather than in nursing facilities and state institutions. This is not only better for the people being served. It is also less expensive per person than institutional placement.
When Medicaid cuts force states to reduce or eliminate home and community-based services, the people who depended on them do not simply manage without. Many end up in nursing facilities or other institutional settings that cost Medicaid more per person while delivering a significantly lower quality of life.
The Supreme Court affirmed in the landmark Olmstead decision that people with disabilities have a right to receive services in the least restrictive setting appropriate to their needs. Medicaid cuts do not erase that legal right — but they eliminate the funding mechanism that makes it real. For the families we serve at Audubon Gardens Group, this is not a theoretical concern. The residents in our homes came from systems that failed them. Several waited years — in one case, more than a decade — for services they were authorized to receive. The cuts being proposed would make that wait longer, for more people, with fewer options at the end of it.
We are watching this legislation closely. We are in contact with APD regional offices and advocacy networks. We are committed to transparency with the families we serve about what we know and what we do not know as the situation develops. What we can tell you now is this: every resident in our homes is receiving the care they were authorized to receive, and our commitment to that does not change based on political conditions.
But we also believe that an informed family is a protected family. The more you understand about how your loved one's services are funded and what threatens that funding, the better equipped you are to advocate for them at every level — with your provider, with your WSC, and with the people in Washington who are making decisions that affect your family.
Take Action at ProtectOurCare.org
Audubon Gardens Group operates licensed APD group homes in Central Florida. Our homes — The Garden at Bennett and The Garden at Ibis — are staffed by credentialed nurses committed to nursing-level residential care for adults with intellectual and developmental disabilities.